ST Alpha - "Substantive life update? Ashlee is set for a video EEG in August where they will try to trigger a seizure and record her brain activity during said " (Reading a Post)

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Substantive life update? Ashlee is set for a video EEG in August where they will try to trigger a seizure and record her brain activity during said

Posted by IrishStephen (aka Sceire) Jun 23 '15, 20:51

seizure. She goes in on the 17th, my birthday, and will be there until she has a seizure, could be 1 day, could be 5... Right now she's been having at least one a week; she even had one at the comic convention, which was scary as shit because she was with the boys checking out booths while I was waiting in line for Trejo's autograph. What has the specialist so concerned is that she's maxed out on her current seizure medication, and every seizure manifests in a slightly varied way. Sucks that we have to wait that long for the test, and that she'll be there for so long, and that I'll have to see how I can possibly juggle the three boys and work and visiting her in SF all at the same time...

And we finally had our phone consult for Connor, to see what course of action we need to take for getting him some counseling (Ashlee was solo on the call). Evidently, he said sounds like PTSD, but can't rule out bi-polar yet, which instantly raised my long held mistrust of the psychiatric profession; in fairness, Ashlee does suffer from bi-polar disorder, so I suppose it's possible, but my god, to throw out these possibilities after a 10 minute phone consultation? My spidey-senses are tingling.

So yeah, answers, we'd like some! heh

Responses:

*thoughts and prayers are with you guys* -- nm - Beaker Jun 24, 03:15
Thanks, everyone. And thank you, RC, for using ya'll. I don't know why but that made me chuckle. heh -- nm - IrishStephen Jun 23, 22:19
I'll light a candle for y'all tomorrow. - ReluctantCynic Jun 23, 22:03
Good vibes to you and Ashlee. -- nm - jaxSean Jun 23, 21:58
Oh, wow. Good luck to both of you. -- nm - David Jun 23, 21:32
eeesh . . . hope you guys figure out the problem and find a solution . . . positive thoughts to both your family and the medical staff ! -- nm - call me Ishmael Jun 23, 21:17
That's a lot to deal with. Good thoughts for you and your whole family. I hope you get some answers very soon. -- nm* - Krusty Jun 23, 21:14
A form of PTSD sounds about right. - tobor.2 Jun 23, 21:11
that's terrifying, but I find it super cool that we have the technology to do these things. -- nm - mafic Jun 23, 21:05
damn, some major sh** in the Curr household..Sending all the good thoughts and more to you -- nm - amoxy Jun 23, 21:02
So scary all round. Best wishes to you all. -- nm - Meg Jun 23, 20:59
ayyiyi. best wishes all around! -- nm - b. Jun 23, 20:56
:( If you don't mind my asking, how long has she had seizures? What type are they? nm - ralph wiggum Jun 23, 20:54 4
- Her first seizure in 2013 was a grand mal. Then she didn't have another one until 3(?) months ago, and they've been called partial complex seizures by - IrishStephen Jun 23, 21:01 3
  - Is she just on the one med? nm - ralph wiggum Jun 23, 21:11 2
    - Yes, just the one. We discussed changing meds with the specialist, but she doesn't want to go that route yet, with Ashlee still breastfeeding, until - IrishStephen Jun 23, 21:15 1
      - Man, that's a lot on your plate. I hope the EEG helps solve the mystery. nm - ralph wiggum Jun 23, 21:24
*low whistle* That's some scary stuff. Good luck to Ashlee - JD Jun 23, 20:52

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Substantive life update? Ashlee is set for a video EEG in August where they will try to trigger a seizure and record her brain activity during said

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