ST Alpha - "Health PSA - If you know anyone with relapsing MS have them look into the Lemtrada treatment ASAP" (Reading a Post)

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Health PSA - If you know anyone with relapsing MS have them look into the Lemtrada treatment ASAP

Posted by Capstern May 2 '16, 09:39

it is disgustingly expensive but usually covered. Just FDA approved in 2014 but been in Europe for a while. Not a cure but the success in arresting the disease and easing the chronic pain for MS people and preventing relapse attacks is showing good data and since so many people have MS and this isnt widely advertised because of the cost - figured get the word out.

5 day treatment 1 time the 1st year and then 3 day treatment 1 time in the second year is about all most people need.

It is about 34K per day for the treatment BUT check with insurance most will cover it eventually.

Responses:

I'm sure the two people I know with MS are more of an expert on treatment options than I am. - znufrii May 2, 09:43 2
- many MS patients dont know about it yet. Its new and only certain infusion centers are qualified to administer it - Capstern May 2, 09:46 1
  - Again, I'm far from an expert on the subject. -- nm* - znufrii May 2, 09:48
is this the widening of the brains veins one? My MIL had that and it worked a little but she is still pretty hard up -- nm - Beaker May 2, 09:40 4
- No they give you something akin to chemo...and 5 days of infusion at 6 hrs a day - Capstern May 2, 09:44 3
  - my husband's best friend is getting a chemo treatment for MS - it's helping a bit, but nothing drastic. -- nm* - Andie May 2, 09:53 1
    - If they are already at that step they might ask. Angie is only 4 months - Capstern May 2, 09:56
  - huh, I'll sock that away; my MIL needs some back surgery first but good to know about it. Thanks. -- nm - Beaker May 2, 09:49

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Health PSA - If you know anyone with relapsing MS have them look into the Lemtrada treatment ASAP

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