an update from Physics Girl*'s team on her continued debilitation from long COVID (*social media science personality.)
Posted by
prayformojo 🐵 (aka mayhem)
Jun 22 '23, 14:00
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Hello everyone. In this video you will get a small update on Dianna's PICC line. It is used to give her medications and fluids for hydration without her having an adverse reaction to it.
OVERALL HEALTH - Dianna is still daily bed ridden, barely able to move. For the past month or so, she has had her ups and downs. Dianna continues to have short windows of time where she can talk for a couple minutes, or maybe play a short tune on her tiny piano. These short positive times are usually followed by a crash for the remaining few days to a week.
For anyone a little new to her situation - She has her daily long chronic fatigue, as well as her MCAS which is causing her to have allergies to essentially and everything you can think of. Artificial smells cause her brain fog, and a long list of physical issues. Also 99% of all foods cause her body to react in poor ways.
(Direct from Levi, her editor and videographer) This month I've had started helping Kyle care-take for Dianna full time. I must say, though I know her situation, it is a completely different experience being here all day. She genuinely has been in a dark room, for many months, with no stimulation, and nothing to do but "try to recover". She does not watch TV, or read, and she can barely sleep. She's awake all day in a room while Kyle, me, and others help her get her food, medications, clean laundry, etc. (She cannot have stimulation of any kind or else her body crashes really hard). I wish I could articulate how surreal this whole thing is. But it is hard to describe what it is like actually being here and seeing someone not only in such poor health, but with no fun outlets and hardly and end in sight.
Dianna's family and friends visit when they can, and there is a lot of hope in the air. We get little glimpses of the old Dianna when she is feeling better and making jokes. It really brightens up everyone's week, even if they are only for tiny periods during the month. We all plan to be at her side while she see's this thing through. None of this has killed her silly sense of humor. We'll have Dianna back some day, hopefully explaining to us the science about this whole thing.
Thanks everyone.
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